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Learn about how to get involved in TSC research and advocacy.
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Lessons & Objectives:
Advancing Research
- Explain how individuals with TSC and caregivers can be involved in research either directly or indirectly (as a participant in research or as an advocate for research)
- Be able to name the ways individuals can be involved in research beyond participating in active clinical studies
Grassroots Advocacy
- Outline the logic of the TS Alliance March on Capitol Hill - how meetings with representatives turn into Dear Colleague Letter endorsements, which can turn into funding requests, etc.
How I Got Involved in TSC Research
Sam Barth, Graduate Student
Watch early-career investigator Sam Barth talk about how he first got involved with TSC and how it's informed his understanding of a wide range of other related disorders.
