Advancing Research

After completing this course, you will be able to: 

  • Explain how individuals with TSC and caregivers can be involved in research either directly or indirectly (as a participant in research or as an advocate for research)
  • Name the ways individuals can be involved in research beyond participating in active clinical studies
Content & Activities
Participating in Research
President and CEO of the TS Alliance, Kari Rosbeck, explains why it is important to actively participate in research.
The Importance of Getting Involved in Clinical Research
Clinician and researcher Peter Crino, MD, PhD explains the importance of clinical biosamples and data in TSC research.
Why do we need so many research subjects?
Physician-researcher Darcy Krueger, MD, PhD explains why clinical trials require maximal enrollment
Community Involvement in Research
Test your knowledge
Take the quiz to test your understanding of the different ways the TSC community can be involved in research.
Lesson Summary
Additional Information
Up Next...
Advocacy
Grassroots Advocacy
Teachers
Zoƫ Fuchs
Science Project Coordinator